DC-Gender Disability, Gender, and Digital Self-Determination | IGF 2023

10 Oct 2023 00:30h - 11 Oct 2023 01:30h UTC

Event report

Speakers and Moderators

Speakers:
  • Nirmita Narasimhan, Programme Director, Saksham and Senior Fellow and Programme Director with the Global Initiative for Inclusive ICT, Civil Society, India (Asia and the Pacific)
  • Katta Spiel, Hertha-Firnberg Scholar, Researcher, Lecturer; Vienna University of Technology; Civil Society; Austria (Central Europe)
  • Judy Okite, Senior Consultant, Accessibility and Equality; KICTANet; Civil Society; Kenya (Africa)
  • Padmini Ray Murray, Founder, Design Beku; Civil Society; India (Asia and the Pacific) [Online moderator]
  • Gunela Astbrink, Director, ISOC Australia; Civil Society; Australia [Onsite moderator]
Moderators:
  • Gunela Astbrink, Onsite Moderator
  • Padmini Ray Murray, Online Moderator

Table of contents

Disclaimer: This is not an official record of the IGF session. The DiploAI system automatically generates these resources from the audiovisual recording. Resources are presented in their original format, as provided by the AI (e.g. including any spelling mistakes). The accuracy of these resources cannot be guaranteed. The official record of the session can be found on the IGF's official website.

Knowledge Graph of Debate

Session report

Gunela Astbrink

The panel discussion focused on the topics of digital self-determination and accessibility, highlighting the importance of empowering individuals and communities to have control over their digital data. Digital self-determination was described as the need to reconsider how individuals and communities can have autonomy over their digital selves. The panel acknowledged that society is still trying to understand the relationship between our lives and the technologies we use.

The discussion emphasized the need to address the digital divide, particularly for marginalized groups such as women, queer, trans persons, and those with disabilities. The panel aimed to make digital self-determination a reality for these groups by shedding light on their unique challenges and perspectives. Feminist perspectives played a central role in the discussion, with a specific focus on women, queer, and trans persons with disabilities.

One key argument made during the panel was that digital tools should be designed with accessibility in mind. It was stated that as a disability community, their motto is “nothing about us without us,” which means that persons with disabilities should be included in the development processes and community discussions. The panel stressed the need for all digital tools to be accessible and usable for all individuals, regardless of their disabilities.

Additionally, the importance of education and empowerment for people with disabilities in the digital sphere was emphasized. The panel shared a story of a determined young woman from Malawi who, despite having a disability and coming from a poor family, managed to study IT. Her education not only empowered her but also enabled her to tutor other students and utilize digital tools, even with her physical limitations. This example demonstrated the transformative power of education in enabling individuals with disabilities to actively participate online.

The panel also raised concerns about privacy and security, particularly for people with disabilities. They acknowledged the potential privacy and security issues that individuals with disabilities, especially those with visual impairments, might face. The need to ensure the privacy and security of these individuals was underscored, emphasizing the importance of safeguarding their personal information and digital presence.

In conclusion, the panel discussion on digital self-determination and accessibility provided valuable insights into the challenges faced by marginalized groups, particularly women, queer, trans persons, and individuals with disabilities. It stressed the importance of designing digital tools with accessibility in mind and promoting education and empowerment to enable active online participation for people with disabilities. Moreover, the panel emphasized the need to ensure privacy and security for individuals with disabilities, recognizing the unique risks they may encounter. Ultimately, the panel highlighted the significance of integrating inclusivity and accessibility into all aspects of the digital realm.

Judy Okite

The analysis emphasises the significance of accessibility for individuals with disabilities, both in physical and online spaces. It reveals that the evaluation of government websites for accessibility showed that 20% of the content remains inaccessible, indicating a pressing need for improvement. This highlights the lack of inclusivity and the barriers faced by persons with disabilities when accessing online information and services.

Furthermore, the analysis argues that individuals with disabilities must be actively involved in the process of creating accessible spaces and developing inclusive technology. It references Judy Okite’s experience in Dar es Salaam, where insufficient provisions for accessibility were observed. This illustrates the importance of including the perspectives and needs of persons with disabilities in the planning and design of physical environments to ensure that all individuals have equal access and opportunities.

In addition to physical spaces, the analysis also stresses the need for awareness and empowerment about rights among individuals with disabilities. Judy Okite’s assertion of her rights for accessible facilities during her stay in Dar es Salaam highlights the importance of advocating for and asserting these rights. The analysis further states that persons with disabilities should have a say in determining what works for them or not, enhancing their autonomy and agency in decision-making processes.

Overall, the analysis stresses the need for greater attention to accessibility in both physical and online spaces. The evaluation of government websites and Judy Okite’s experiences serve as evidence of the existing barriers and the urgent need for improvement. It argues that involving individuals with disabilities in the design and development of accessible spaces and technology, as well as promoting awareness and empowerment about their rights, can lead to a more inclusive society.

Audience

The implementation of certain features, specifically Zoom’s automatic captions, has had negative consequences for individuals with disabilities, particularly those who are deaf or hard-of-hearing. These automatic captions, intended to enhance accessibility, have instead led to confusion and disempowerment. This is due to the overlapping of captions in multiple languages, which obstructs the reliance on captions and lip-reading that these individuals heavily depend upon.

In order to avoid such detrimental effects, it is argued that technology companies should collaborate closely with individuals with disabilities and conduct comprehensive user research prior to implementing new features. By involving the very users who will be utilizing these features, technology companies can gain valuable insights that will result in more inclusive technology. This call for collaboration and user research is further supported by the incident involving Zoom, which serves as an example of the negative consequences that can arise from a lack of proper user research.

Furthermore, the importance of inclusive technology development is emphasized as a means to reduce inequalities and enhance accessibility. It is asserted that by working closely with intended users, technology companies can create technology that caters to the diverse needs of individuals with disabilities. This collaborative approach ultimately leads to more inclusive technology that empowers individuals rather than inhibiting their capabilities.

To conclude, the implementation of certain features, such as Zoom’s automatic captions, has had unintended negative consequences for individuals with disabilities. To address and prevent such issues, it is crucial for technology companies to engage in comprehensive user research and collaborate closely with individuals with disabilities throughout the development process. By doing so, technology companies can create technology that is truly inclusive and empowers individuals with disabilities.

Nirmita Narasimhan

The analysis highlights the importance of policies in ensuring compliance with accessibility standards. Countries with clear policies are more likely to effectively implement accessibility measures, as policies provide guidelines on what needs to be done, how to do it, and where it should be implemented. This is seen as a positive factor in promoting accessibility. The analysis also advocates for the creation and implementation of policies in countries where they do not exist, as well as the strengthening of existing policies to promote equal access to rights and opportunities for all individuals, including those with disabilities. While many countries have incorporated the Convention on the Rights of Persons with Disabilities (CRPD) into their legislation, the analysis suggests the need for the development of domain-specific policies to address specific accessibility issues in various domains. Different strategies for advocacy are required in different situations, as evidenced in the context of India. Active involvement of persons with disabilities in advocacy and policy-making processes is emphasized, as their perspectives should be adequately represented. The analysis also stresses the need for mainstream products to be universally designed, taking into consideration varying user needs and abilities. A user-centric approach in product design and enhancement is deemed essential to improve accessibility. Overall, the analysis underscores the significance of policies, the involvement of persons with disabilities, and the user-centric approach in achieving accessibility goals.

Debarati Das

During the analysis, several significant points were raised by the speakers. A central topic of discussion was the concept of digital self-determination, which highlights the need to understand who we are as digital beings as our digital footprints continue to grow. This evolving concept addresses critical questions surrounding the ownership and control of our data in cyberspace, affirming that a person’s data is an extension of themselves. It emphasises the importance of considering the rights and autonomy of individuals in the digital realm.

One key insight that emerged from the analysis was the significance of examining the experiences of individuals with disabilities in relation to digital self-determination. It was observed that digital spaces and decisions driven by data can greatly impact the autonomy and agency of individuals with disabilities. Therefore, there is an urgent need to explore how individuals can exercise control over their digital identities and have autonomy over their digital selves. By unpacking digital self-determination through the lens of the experiences of persons with disabilities, efforts can be made to reduce inequalities and promote inclusivity in the digital world.

Another important point discussed was the value of Design Beku and its principles of Design Justice in the field of design. Design Beku, a design and digital collective founded by Padmini Ray Murray, advocates for designing with communities, as opposed to designing for them. This approach aligns with the principles of design justice, which include ethics of care, feminist values, participation, and co-creation. By involving communities in the design process, Design Beku strives to create more inclusive and equitable solutions that address the diverse needs of different groups. This approach contributes to achieving the Sustainable Development Goals related to industry, innovation, infrastructure, reduced inequalities, and gender equality.

In conclusion, the analysis underscored the importance of digital self-determination, specifically in understanding our digital identities and asserting control over our data. It emphasized the significance of considering the experiences of individuals with disabilities to promote autonomy and agency in digital spaces. Additionally, the value of Design Beku and its Design Justice principles in advocating for inclusive and community-centered design practices was highlighted. These discussions provide valuable insights for addressing the challenges and opportunities associated with industry, innovation, infrastructure, reduced inequalities, and gender equality in the digital age.

Manique Gunaratne

Technology plays a crucial role in enabling individuals with disabilities to participate equally in society. Assistive devices and technologies act as a bridge between people with disabilities and their environment, allowing them to perform tasks that they might otherwise find challenging or impossible. This can include devices such as mobility aids, hearing aids, and communication tools. With advancements in technology, artificial intelligence (AI) has emerged as a powerful tool in improving the lives of people with disabilities. AI has the potential to make life easier for individuals with disabilities by developing solutions that cater to their specific needs and requirements.

However, cost proves to be a complex barrier to accessing technology for individuals with disabilities. While emerging technologies, such as AI and smart glasses, hold promise in enhancing the lives of people with disabilities, they often come with a hefty price tag. This poses a significant challenge, as many individuals with disabilities may struggle to afford these expensive technologies. The high cost of such innovations acts as a deterrent, limiting the accessibility of these technologies to a privileged few. Therefore, there is a need for collaborative efforts between technology developers, policymakers, and advocacy groups to address this issue and ensure that cost does not impede access to life-changing technology for individuals with disabilities.

Moreover, entertainment and emotional recognition technologies can greatly benefit certain disabilities, such as autism and intellectual disabilities. Emotional recognition technologies can assist individuals with these disabilities in understanding and interpreting emotions, which can contribute to enhancing their social interactions and overall well-being. Accessible platforms and games are also vital for providing entertainment to people with disabilities. These platforms cater to their unique accessibility needs and ensure inclusive participation in entertainment activities.

In conclusion, technology holds immense potential in empowering individuals with disabilities and enabling their full participation in society. Assistive devices and technologies act as enablers that bridge the gap between people with disabilities and their environment. AI, in particular, has revolutionized the landscape by offering tailored solutions to the needs of individuals with disabilities. However, the high cost of emerging technologies presents a challenge to their widespread accessibility. It is crucial for stakeholders to address this issue and work towards ensuring that cost does not impede access to these life-changing technologies. Furthermore, the development of entertainment and emotional recognition technologies specifically tailored for individuals with disabilities can greatly contribute to their well-being and quality of life. By embracing and advancing technology, we can create a more inclusive and accessible society for all.

Vidhya Y

The use of digital platforms has brought both positive and negative implications for individuals with visual impairments. On the positive side, these platforms have opened up new opportunities for communication and independence. Email, for instance, has revolutionised written communication, which was not previously possible without the advancement of technology. Digital tools, such as apps designed to identify colours and currency, have also empowered visually impaired individuals by providing them with greater independence and autonomy.

Furthermore, assistance tools like ‘Be My Eyes’ have proven to be invaluable resources for visually impaired individuals. These tools connect visually impaired individuals with sighted volunteers who can assist them in various online tasks, such as reading CAPTCHAs. This collaboration demonstrates the power of digital technology in providing inclusive and supportive environments for visually impaired individuals. Moreover, these tools can be used creatively for tasks like matching clothing colours, further enhancing the independence and quality of life for those with visual impairments.

However, there are also negative aspects that must be addressed. Accessibility remains a significant challenge for visually impaired individuals in the digital space. Many websites are primarily image-based and lack proper labelling, rendering them impossible to navigate using assistive technologies. This accessibility barrier hinders visually impaired individuals’ ability to access information and participate fully in the online world. Additionally, understanding and keeping up with new features and technologies can be daunting for visually impaired individuals, as design choices are often not optimized for their needs.

Moreover, women with disabilities face additional challenges in digital spaces. Privacy and vulnerability concerns are particularly prominent, as crowded environments or the use of screen readers may compromise their privacy when using digital platforms. This puts them at a disadvantage, highlighting the need for further measures to ensure the digital space is inclusive for all individuals, regardless of gender or disability.

In conclusion, the digital space presents both empowering and challenging aspects for individuals with visual impairments. While digital platforms have provided newfound opportunities for communication and independence, there are still accessibility issues that need to be addressed to ensure inclusivity. Furthermore, women with disabilities face unique challenges, emphasising the importance of considering diverse perspectives and needs in the development of digital tools and platforms. By addressing these challenges, we can create a more inclusive digital environment that truly benefits all individuals.

Padmini Ray Murray

The implications of surveillance capitalism and device use are particularly burdensome for disabled individuals. These individuals face additional challenges and risks due to the compromised nature of the devices they rely on. Unfortunately, most technology designs targeted at disabled users fail to consider these implications, exacerbating the difficulties they already face.

To address this issue, it is crucial to establish effective communication channels with disabled users in order to fully understand their specific needs and requirements. By engaging in conversations with designers and technologists, disabled individuals can provide valuable insights that can inform the development of more accessible and inclusive technologies. This collaboration can lead to better solutions that truly meet the needs of disabled users, going beyond basic accessibility requirements.

Furthermore, marginalized populations, including disabled individuals, are particularly vulnerable to privacy and surveillance issues. These groups often have limited opportunities for recourse when their privacy is compromised. It is imperative to pay special attention to the impact of surveillance on disabled users and their ability to exercise self-determination. Ensuring their privacy and autonomy is essential for promoting inclusivity and reducing inequalities.

One of the challenges in technology design is the tendency to create products at scale, which hinders the ability to provide more nuanced and individualized user experiences. Technology development often prioritises mass production and standardisation, which leaves little room for customisation. However, creating customised products requires a paradigm shift in thinking, moving away from one-size-fits-all approaches. Artificial Intelligence (AI) can play a crucial role in achieving this shift by enabling more personalised and tailored solutions for disabled users.

In conclusion, there is a pressing need to create more individualised and user-tailored experiences in technology design. This entails actively involving disabled individuals in the design process, fostering collaboration between designers, technologists, and users. Additionally, advocating for their rights and addressing the unique privacy concerns they face is crucial in building a more inclusive and equitable technological landscape. By embracing a paradigm of customisation and leveraging the potential of AI, we can empower disabled users and ensure their needs are met in a more meaningful and comprehensive manner.

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